To deliver specialist clinical nursing, advice and support to children, young people, and their families with cancer, predominantly focusing on patients with a diagnosis of leukaemia, myelodysplastic sydromes (MDS), aplastic anaemia, haemophagocytic lymphohistiocytosis (HLH) and other rare diseases associated with a predisposition for a blood cancer, supporting them from the point of diagnosis, throughout treatment and into end of life if cure isn't possible.
Main duties of the job
To deliver specialist clinical nursing, advice and support to children, young people and their families with cancer.
To act as a specialist resource for all professional staff within the Trust, both in the hospital and within the community.
To work alongside Nurse Specialists in promoting good practice in the treatment and care of children and young people with cancer.
Participate in the education and training of parents/carers and other professionals
To help undertake research and audit to support the development of the service.
To contribute toward the development of strong networks with local, regional and national voluntary and statutory bodies, in order to provide individually tailored high quality care.
Detailed job description and main responsibilities
Provide specialist nursing support and advice to children and families with a cancer diagnosis across hospital and community setting.
Manage a case load to ensure all children have a named specialist nurse and benefit from key worker elements of the role.
Perform comprehensive assessment of the nursing needs. Plan, implement and evaluate care delivery according to changing health care needs.
Order and interpret investigations/results and take appropriate action.
Prescribe and adjust doses for patients on oral maintenance chemotherapy.
Actively participate in the development of care pathway, patient information and treatment protocols which reflect and endorse latest research findings.
Promote the availability of psychosocial support and advice for families, utilising a counselling framework recognising the need to refer on to other services where appropriate.
Actively partake in the development of clinical care pathways, patient information and treatment protocols which reflect and endorse latest research findings and good clinical practice.
Participate in the coordination of transitional care at necessary time points.